Day 18

So the bad news today is that the Trilogy didn't come!  There was a miscommunication between the DME and the Case Worker for the Hospital but we are on for tomorrow at 1:00!  Addy had another great day today!  This morning they woke up her a littler earlier then she was use to and when I say that I say it with pure sarcasim!!  She wasn't quite ready to be off of her mask around 10 so we put her back on her BiPap and let her take a nap until 12 and tried again.  After her CPT treatment at 12 we keep her off of her BiPap for 1.5 hours and she did FANTASTIC!  We put her back in the wagon and took her down to the Pediatric unit to see the play room where they have a big tree.  She loved laying in the wagon under the tree looking at the pretty flowers and leaves.  While leaving the Peds unit heading back to the PICU we were busted by Daddy!!  He had told Addy's nurse, Mandy last night he wanted her to stay in the PICU and not go to the Peds Unit due to germs (which makes a lot of sense) but she assured me this morning that they don't let the sick kids go to the play room (which is an open area).  After we made it back to the PICU we did laps around the PICU for about an hour (I told all the nurses that this was the most exercise I'd gotten in a 2.5 weeks which we all thought was pretty funny but also sad...haha)!  Addy took a great nap this afternoon and is now off her BiPap machine again watching Cars.  We are hoping to do a few more laps around the PICU later!  Addy has been FULL of smiles today which just melts my heart!!

*updated evening ~ Addy spent 2.5 hours off of her BiPap this evening...woo hoo!!

Time to go for a walk...yay!! 

Mommy and Addy by the tree 

Looking up at the pretty flowers on the tree 

peek a boo 

watching Cars on my IPad 

this smile just melts my heart!!

Cutest PICU Bunny I've ever seen!! 

Daddy remembered to bring my Bunny Ears and Aunt Jane brought another pair so she has TWO!!