End of Day 7 and Start of Day 8

Addy had a great day Saturday! Her stats were better and while awake she did great on the vent. She has been napping quite and bit but while awake watching lots of movies. I'm afraid she may actually be turning into a Daddy's Girl because during her treatments she needs her Daddy by her side to keep her calm! Anytime she hears my voice or see's me she gets really excited and of course wants mommy to make the vent go away which obviously I can't. It's not that she doesn't want me by her side she just wants mommy to make it all go away! Yesterday was an uneventful day which James, Addy and I deperately needed! We had a few vistor's come up and Matt and Stephanie brought us dinner again (Baked Spaghetti...yum!). Yesterday was Aubrey's Birthday Party so after the party Randy came up to spend a little guy time with James (which he def. needed).

Addy had a GREAT night! She slept all through the night (even during her treatments). The medicine they have been giving her to help relax her at night has definitely been working! After a full night sleep Addy decided she needed to sleep in as well! Dr Kayrouz came in with RT and Addy's nurse to do rounds and she slept right through them. The X-Ray this morning showed that her lungs were clear (the best they have been all week). He is very pleased with where Addy is at and the plan is to extubate tomorrow morning between 8-10 am. This morning a therapy dog came through the PICU to visit all the kids and Addy was so excited to meet her new friend "Jack". Jack is a Golden Retriever who is apart of the Carilion Therapy program. Jack even had his very own Carilion Badge (which I thought was pretty neat)! We weren't sure how Addy was going to be able to see Jack but Addy's nurse (ashley) pulled in a chair so Jack could sit at Addy's bedside. She immediately turned her eyes to Jack and even got to pet him!  The lady was telling us that she would be back tomorrow with another dog and said they would stop by!  We are hoping for another uneventful day so Addy will be fully rested for her big day tomorrow! Extubation is very scary for SMA kiddos. Dr. Kayrouz said there is a chance that she may not be ready and they will have to intubate her again but we are praying that doesn't happen! Please pray for a smooth transition from vent to BiPap tomorrow! Addy is definitely ready for the vent tube to come out!!

Hanging out with Aunt Allison's Duckie!! 

Sunday morning (4/10) sleeping in 

Addy's new friend Jack! 

Checking him out 

Reaching out to pet Jack 

Who's more excited about Jack (Addy or Mommy)??? 

Watching Princess and the Frog 

I have missed this smile sooooo much!