Day 17 evening

This evening I went with Christina and Dock to Macys to help them with their registry!  We had lots of fun picking out stuff for their home but I think James and his parents had even more fun at the Hospital with Addy!  They took her off of her BiPap machine for 2 hours this evening!  James finally got to hold her and I could tell by his voice on the phone he was pretty excited!  They also took her for a walk in a wagon around the PICU.  Addy's nurse (Mandy) told me that Daddy did not break any rules and he said she had to stay in a certain part of the PICU because there were germs...haha!  I love that he is sooo over protective of her especially in a hospital and especially when Addy's nurses are not going to let her get anywhere near sick kids!  Sooo sweet!  When they went to put her back on the BiPap James said she wasn't too happy because she really enjoyed the freedom.  When I got back up to the Hopsital Addy immediately heard my voice and of course I saw a big smile....YAY!!  James talked to Dr. Schroth this evening (Addy's pulmonologist from WI) and she was pretty impressed that Addy was on room air, her stats were holding strong and she had been on her BiPap for periods of time.  She said we are def. heading in the right direction but of couse we needed to continue with chest PT every 4 hours to make sure her lung didn't fill with Atelectasis again.  She said that it's something that could definitely happened and wanted to let us know just incase it did.  Overall though she was very impressed with our little princess!  We are super excited about getting the Trilogy tomorrow.  We have been waiting for months for this piece of equipment and it's such a relief to know we finally are getting it for Addy.  It's crazy to think that we are this excited over a piece of medical equipment...wow something I thought I'd never say!!  HAHA  The PICU staff is hoping to send us home Friday or Saturday but that will all be based on how Addy is and what her lung looks like when they shoot another X-Ray. 
Please say an extra prayer for a young girl named Chelsea.  We met Chelsea's parents after Addy's admittance into the PICU and their story has really touched our heart.  Chelsea is a 15 year old girl who definitely needs all of our prayers.  She has been in the PICU now for 9 weeks (today) and is finally getting to go home tomorrow.  They are trying to get her into a special school and found out today she was denied.  They are going to try again in a month but it sounds like something that could really benefit her!  Her parents are so sweet and have helped spoil Addy even more.  They have been through SO much in such a short amount of time and my heart is pretty heavy for them!