Carilion Clinic Children's Hospital

Saturday March 31 began our new adventure home at Carilion Clinic Children's Hospital aka Roanoke Memorial.  Everyone has welcomed us with open arms and ready to get Miss Addy better!  Tuesday (April 3rd) Addy was successfully extubated.  A few hours later the atelectasis settled back in and she destated fast and low!  I dont' remember the extact number but I know it was in the 30's and she was definitely blue.  It's NEVER easy to see my sweet girl turn blue but I'm so thankful for quick acting nurses and RT's who don't hesitate and know extactly what to do.  Once we got her stable we decided she wasn't ready for her nasal mask and needed the pressures from a full face mask. The last 10 days have been a roller coaster ride, some days good, some not so much; some mornings not so good with great evenings!  One thing for sure she has had excellent nights!  Tuesday night after talking with Dr. Schroth we decided to stop doing nasal mask vs full face mask trials.  She said it was not helping Addy and to give her a 24-48 hour break and only keep her full face mask.  She said she wanted us to get her BiPap settings back to "normal" and on room air, requiring NO oxygen.  She has handled the lower settings great and we can tell she is much calmer and happier.  We are still working to get her back on room air but she is close!  Last night (Thursday) she was on room air basically all night, today she's needed about 25-30% (room air is considered 21%).  We know that it is going to take Addy a while to get back to her base line and we are totally ok with that!  She was int he hospital for a total of 21 days last year.  This year she is a year older but also a year weaker so we know it's going to take longer.  We are not pushing her or setting high expectations our motto is baby steps and that's all we are hoping and praying for.  Please continue to keep Addy in your prayers.  

James bought three balloons while we were at Arnold Palmer that he couldn't wait to show Addy once we were home.  They are HUGE!!!  

for the past 2 weeks we have watched A LOT of Cinderella and Tangled

Easter basket from Auntie Stine and Uncle Dock

Easter basket from the Creasy's!  Thank you Heather, James, Peyton and Nono

someone was very excited about being able to lay in the bed with Addy

Addy's track record isn't too great when it comes to being in the hospital on Aubrey's birthday!  It's a good thing Aubrey loves Addy so much and is so forgiving!  Addy is SO lucky to have such a sweet friend in her life.  She tells Lindsay all the time how she misses Addy! ahhh tear jerker!!

look what the Easter bunny brought me!!

Easter basket from Grammy and Poppa

Even Great Grandma Mary brought me a present.  This chicken is sooo funny!  It dances, sings and lays eggs.  The entire PICU staff (including all our visitors) have LOVED it!!